Still just slow progress

Nothing much has changed for Kenzen in the last few days. His lung is still open and his xrays continue to look better each morning. They are starting to wein him down on the vent so we can try to get him off. They are going very slow like maybe making a small change once a day. At the rate he is going he might be ready to take out the tube in one week. The biggest thing he needs to get over now is just being able to keep his lung open on his own once he's off the breathing machine. They have changed all of his meds back to oral and he is now just on methadone and adavan to help keep him calm. He will wake up and play with toys but you can tell he is just really relaxed. I'm glad that he is able to be that way because he doesn't really get upset and he even leaves all the tubes alone. He has the breathing tube in his mouth and a tube through each nostril that I thought for sure he would try and pull out once he was awake. I think the medicine is doing its job in keeping him very calm and content.