WHY GOD SENDS HLHS BABIES

It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you." He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down and says, "How about if you leave half of your heart here with me and take the other half with you. Will that be okay?" The angel smiles and says, "I guess that will work." But the little angel is still a little scared. He asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will. I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says, "When you are born your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family play and laugh everyday, and when it's time to come back to heaven I will make your heart whole again. Always remember that you are not broken just torn between two loves."

Monday, June 11, 2012

1st failed attempt

So Kenzen was able to get extubated yesterday morning. He did really well and was so happy to have that tube out. We were able to hold him again which he loved but he is definitely harder to handle this time. Last time he would just be happy sitting on our laps this time he wants to grab everything and I mean everything. He did great until around 4 am in the morning his lung collapsed again. He looked fine like his sats stayed the same and he didn't work any harder to breath. They are just going to try cpap to see if they can get it open again. Last time though they had to reintubate to get it to open up again. I guess it's a good thing that he didn't change clinically because he might have to get that lung cut out one day with how high his pressure were and with how the blood flows through that lung.
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