WHY GOD SENDS HLHS BABIES
It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you." He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down and says, "How about if you leave half of your heart here with me and take the other half with you. Will that be okay?" The angel smiles and says, "I guess that will work." But the little angel is still a little scared. He asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will. I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says, "When you are born your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family play and laugh everyday, and when it's time to come back to heaven I will make your heart whole again. Always remember that you are not broken just torn between two loves."
Tuesday, June 7, 2011
Finally the whole family is together for the first time. We arrived in Minnesota late Sunday night and the kids got to meet Kenzen for the first time Monday morning. The kids are doing great with being here they offer a play room with a lot of fun toys that they have volunteers to watch them while me and Dave hang out in Kenzens room. Kenzen is doing really well. They were able to take his chest tube out on Saturday and so far his X-rays have been great. They were also able to get him down to a mode on ventilator where he is doing all the work. They put him on that for a few hours every eight hours to get him ready for excabation( taking he breathing tube out) They were hopefully going to get him off the machine on Monday but he developed a fever on Saturday night that concerned them . The cloture from his art line came back positive for infection so they started him on antibiotics and had to stop doing the trials with his vent. But the cloture from Monday morning so far hasn't come back positive so we are hopeful that the infection is gone and today which is Tuesday they have started doing the trials again for his breathing machine. If everything goes well and no more infection he should get his breathing tube out in the next couple if days which means we can finally hold him and he is that much closer to coming home. After he is off the machine all he has to do is be able to eat even if he can't take a bottle as long as he can handle the food without developing another leak that requires another chest tube they will send him home with either a feeding tube through his nose or they will out one going directly into his stomach through his abdomen. The other thing that might set him back is a pacemaker. They still haven't decided if he really needs one or not yet they are waiting to see how he does once he's off the breathing machine but we are told that procedure shouldn't delay him but maybe only a few days. We are going to talk to the surgeon today about the pacer later today and I'll post again either when that decision is made or hopefully in a few days when he's off his breathing machine. I'm really hopeful that he will get to come home by the end of this month as long as he doesn't get anymore complications. Thank you for all the prayers and support.
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