Not a good day

Yesterday Kenzen went in for his cath. We had to be at the hospital at 10:15. He was such a good boy he didn't even cry out of hunger he just played and then took a nap while we waited for them to come get him. His cath time was much shorter this time maybe 2 hours instead of 4. Because of that I thought things had gone good. When we got in the room to talk to the doctor he said he had nothing but bad news to tell us. He let us know that his stent was still good and it looked the same. His problem is that his body has been making a lot of extra veins which for him is a very bad thing. It has made his left lung pretty much worthless. Also because of the way it has made his blood flow his pressures in his lungs are pretty high. That makes him not be able to get the oxygen that he needs and that's why he has been desating lately. They also told us that because of that he is now not a candidate for the third heart surgery. He also let us know that when they were taking him off the breathing machine he started to bleed from his lungs so they had to keep him on the breathing machine. Now we are in the icu again. The bleed has gotten better but now his left lung is collapsed again. Tomorrow they are going to take him to the OR and do a bronc and try and clean out his lung and get it open again. I was very upset yesterday and angry with the situation. I took yesterday to mean that he was going to go home and die soon. I was able to talk to his cardiologist today and he let me know that there are some kids that don't have the third surgery and they are teenagers. They do usually have lower sats and not as much energy. But that made me feel a lot better. We still aren't sure what the plan is going to be for him they are going to meet with the team of doctors over the next few weeks to see what there recommendations would be. The doctor said that he is the worst case for having so many extra veins that he has ever seen. He also said that there isn't a good answer of things to do it's kind of like cancer it just grows and grows and they don't really know what to do to help him. I will continue to update when things change.