WHY GOD SENDS HLHS BABIES

It's a beautiful day up in heaven. Jesus is rounding up his tiniest angels, to go live on earth, and be born. One of the sweetest angels says to Jesus "I don't want to leave, I like it here, and I will miss you." He reassures the scared little angel that everything will be okay, and that he is just going for a visit. He is still not swayed on this idea. So Jesus kneels down and says, "How about if you leave half of your heart here with me and take the other half with you. Will that be okay?" The angel smiles and says, "I guess that will work." But the little angel is still a little scared. He asks, "Will I be okay with only half of my heart?" Jesus replies, "Of course you will. I have other angels there that will help out, and you will be fine." Then Jesus gives the angel more details about his plan. He says, "When you are born your mommy will be scared, so you have to be strong, and when you feel weak just remember that I have the other half of your heart. Enjoy your time with your family play and laugh everyday, and when it's time to come back to heaven I will make your heart whole again. Always remember that you are not broken just torn between two loves."

Wednesday, October 26, 2011

End in sight

So Kenzen has seemed to turn a corner. He did have another bad Xray Sunday and he was breathing fast so they put him on a cpap machine over night. Since then it has been cpap at night and a high flow nasal cannula in the day. Today he has been doing really well. They came in for rounds and his oxygen was off and on his forehead and he didn't seem to be bothered and his sats stayed in a good range. The doctors had discussed just taking the oxygen off but some thought that was to fast. So today they cut his support in half on the flow and he's only on 30% for oxygen and room air is 21% so he's really low. He looks so good that Dr Overman said as long as he continues to do this well he will let him come home on Monday. Some doctors were saying Tuesday or Wednesday but Overman said Monday to get us home for trick or treating. I'm hopeful that Kenzen will continue to do well and we will get to be home on Monday.
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